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Improving endometriosis care

Nearly one million Australians suffer from endometriosis. The disease, which occurs when tissue similar to the lining of the uterus grows outside the womb, can cause debilitating pain, pelvic inflammation, headaches, fatigue, and even infertility. It can affect ability to work, relationships, fitness, education and mental health. In fact, associated healthcare expenses and loss of social and economic engagement cost Australia billions per year.

And yet, despite its undeniable toll, pathways to diagnosis and treatment remain challenging. Painful symptoms are often overlooked or normalised, and the most common diagnostic tool, a keyhole surgery, is costly and invasive. These factors result in a laborious diagnostic process, with the wait time averaging more than six years.

Fortunately, researchers from the ³ÉÈË´óƬ are breaking down the barriers to accessible care. They’re using AI to spearhead less invasive diagnosis through the IMAGENDO study. They’re exploring new medicines for pain management. And with EndoZone, a research-led digital health platform, they’re building a community where endo patients don’t have to be alone.

Join us in August for the latest on our pioneering endometriosis research.

The presenters

Professor Louise Hull is an Obstetrician and Gynaecologist with a PhD in endometriosis from the University of Cambridge. She founded and leads the Adelaide Endometriosis Research Group at the ³ÉÈË´óƬ’s Robinson Research Institute. She was invited to the National Action Plan for Endometriosis, and she is an International Ambassador for the World Endometriosis Society. Hull presents internationally, publishes widely, and teaches PhD, Masters, medical students and fellows. She also provides fertility and endometriosis consultations at Women’s and Children’s Hospital and Embrace Fertility in Norwood.

Dr Beck O’Hara, PhD is an experienced researcher who has worked in chronic disease, health policy and health promotion research for more than 15 years for state and local government, non-profit organisations and universities. Since 2019, her work has focused on improving endometriosis diagnosis and management through digital health technologies. She is the Project Coordinator of EndoZone, a digital platform designed to empower and support people with endometriosis, which is funded by the Australian Government.

Dr Jodie Avery BA, BAppSc, MPH, PhD, is a Senior Research Fellow and Imagendo Program Manager in the Adelaide Endometriosis Research Group with the Robinson Research Institute. As a chronic disease epidemiologist, her primary area of research has concerned non-invasive diagnosis, quality of life, and the intersection of women's chronic health conditions with psychosocial factors that may influence other associated comorbidities. This includes investigating psychosocial and mental health aspects of women’s chronic conditions such as Endometriosis, Polycystic Ovary Syndrome (PCOS), and Incontinence throughout the life course. Ultimately, she hopes to increase awareness and timely care for Endometriosis and PCOS within the medical community.